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Health Data in the Information Age : Use, Disclosure, and Privacy

Health Data in the Information Age : Use, Disclosure, and Privacy - 94 edition

ISBN13: 978-0309049955

Cover of Health Data in the Information Age : Use, Disclosure, and Privacy 94 (ISBN 978-0309049955)
ISBN13: 978-0309049955
ISBN10: 0309049954
Cover type:
Edition/Copyright: 94
Publisher: National Academy Press
Published: 1994
International: No

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Health Data in the Information Age : Use, Disclosure, and Privacy - 94 edition

ISBN13: 978-0309049955

Institute of Medicine, Molla S. Donaldson and Kathleen N. Eds. Lohr

ISBN13: 978-0309049955
ISBN10: 0309049954
Cover type:
Edition/Copyright: 94
Publisher: National Academy Press

Published: 1994
International: No
Summary

Regional health care databases are being established around the country with the goal of providing timely and useful information to policymakers, physicians, and patients. But their emergence is raising important and sometimes controversial questions about the collection, quality, and appropriate use of health care data.

Based on experience with databases now in operation and in development, Health Data in the Information Age provides a clear set of guidelines and principles for exploiting the potential benefits of aggregated health data--without jeopardizing confidentiality.
A panel of experts identifies characteristics of emerging health database organizations (HDOs). The committee explores how HDOs can maintain the quality of their data, what policies and practices they should adopt, how they can prepare for linkages with computer-based patient records, and how diverse groups from researchers to health care administrators might use aggregated data.

Health Data in the Information Age offers frank analysis and guidelines that will be invaluable to anyone interested in the operation of health care databases.

Table of Contents

INTRODUCTION

Advancing the Prospects for Comprehensive Health Databases and Networks
Health Database Organizations
The Institute of Medicine Study
Study Activities
Organization of the Report
Comment


HEALTH DATABASES AND HEALTH DATABASE ORGANIZATIONS: USES, BENEFITS, AND CONCERNS

Definitions
The Benefits of Health Databases
Users of Information in HDOs
Users of Databases
Ensuring the Quality of Data
Summary


PUBLIC DISCLOSURE OF DATA ON HEALTH CARE PROVIDERS AND PRACTITIONERS

Previous Studies
Important Principles of Public Disclosure
Important Elements of Public Disclosure
Committee Findings and Conclusions
Recommendations
Strengthening Quality Assurance and Quality Improvement Programs
Summary
Appendix 3A


CONFIDENTIALITY AND PRIVACY OF PERSONAL DATA

Historical Perspectives and General Observations on Disclosure of Information
Sources of Concerns about Privacy and the Confidentiality of Health Records
Definitions
Expanded Definitions
Harm from Disclosure and Redisclosure of Health Record Information
Privacy Interests and HDOs
Relevance of Existing Laws to HDOs
Options for Protecting Privacy and Confidentiality of Health-related Data in HDOs
Committee Recommendations
Comment
Summary



References
Appendixes

A Fact-Finding for the Committee on Regional Health Data Networks
B Committee On Regional Health Data Networks Biographical Sketches

Glossary
Acronyms
Index

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